Shoutout to Jolanda Groenhuijzen, MD for her tireless dedication to patient-led innovation. Your work is an inspiration to us all!

It’s not enough to simply understand patients. We must actively involve them in the development of solutions that meet their needs.

Why this matters?

Because when we co-create with patients, we unlock a powerful competitive advantage that sets us apart in the market.

Here’s what I’ve seen some of the most innovative teams do:

Instead of relying on existing, sometimes outdated Patient-Reported Outcomes (PROs), they partner with patients to update and create new PROs that capture the nuances of the modern , patient experience.

Here’s how to do it:

Engage a diverse mini-community of patients
• Aim for a representative sample across geographies, ages, genders, and ethnicities
• Keep the group small enough to foster deep, authentic conversations

Empower patients as research partners. Yes, patients can be more than research respondents.
• Train patient experts to conduct peer-to-peer interviews
• Leverage the mini-community for agile, iterative research
• Dive deeper into emerging topics and uncover rich insights

Collaborate with patients to refine PRO measures
• Identify gaps in existing PROs and co-design solutions
• Ensure comprehensive assessments that inform personalized care

Even though this approach may be new to some, the impact is undeniable. By elevating the patient voice, we can create solutions that truly resonate and differentiate our pipelines.

Curious to learn more? Check out the incredible work of our Partnering Lead, Dr Jolanda Groenhuijzen, MD, who led a groundbreaking project co-designing PROs with a mini-community of Multiple Sclerosis patients. Her insights are a game-changer!

https://lnkd.in/gqV6DDBs