I wanted to share something exciting I discovered recently about gathering patient insights.
Have you heard of the SCAPE study? They’re doing great work capturing real experiences from cancer patients in Switzerland for last 3 years. What caught my eye was how they made their questionnaire and methods public (you can find all the results right on their website) - this kind of sharing helps everyone in healthcare do better!

What I love about SCAPE’s approach is how they focus on the full patient journey:
• What happens before diagnosis
• How doctors communicate with patients
• How treatment decisions are made
• What support patients get
• What happens after treatment

This fits the approach we’re taking at Merakoi, especially when working on clinical studies.

Here’s what I’m curious about: What tools or resources have you found helpful for understanding patient experiences? Maybe you’ve seen other great examples of patient insight programs?
Send them my way! I’m always excited to learn about new approaches to patient collaboration. After all, we don’t need to reinvent the wheel - we just need to share what works! 🚀
#PatientVoice #Healthcare #Innovation #PatientEngagement